Thalassaemia Awareness Talk in HTJ

Attended a talk organized by Negeri Sembilan Thalassaemia Association in conjunction with a pharmaceutical company for lay person on thalassaemia last Saturday which was rather interesting. An one day whereby they educate lay person about the hereditary disease. The programme lasted from 9am to 2pm and was started with short talk from HTJ Pengarah and Head of Department of Paediatric in HTJ.

Amusingly, it's all communicated in Malay language which i think most of the talkers find difficulty with when they have long communicate in English ever since they joined the medical profession.

There was a talk on the overview of thalassaemia disease which they keep on emphasizing that it's not infectious followed by another talk about the management, working opportunity and issue in pregnancy.

Of course, the most interesting part would be from the pharmaceutical company where they have 2 short video summarising the effect of iron overload and the life of thalassaemic patients after they found out the oral solution instead of the injection. undoubtterly, the cost was not shown, just to terrify the public. haha

The lousiest part? it is a talk by the personnel from government working resources. Basicly, she was just not prepared for this talk. She gave a talk on how to get a job for a normal person without any consideration for thalassemic patients who would require more holidays for their blood tranfusion. Bad day for her, as she actually manage to trigger the rage from some of the patients. How impressve...

Anyway, we were glad to have the free guideline for thalasaemmia which would be very useful for us. Though the breakfast and lunch was provided, it was not really a good meal as there was a lot of people attending the talk. Once you are late in queing there goes the 15 minutes just for that.